medical_informationAdvance directive consent — Art. 9 GDPR

Your health data
deserves special protection.

Advance healthcare directives contain information about your health. Before you go any further, we ask for your explicit consent — separate from any other terms.

shield Art. 9 GDPR — Health data balance Italian Law 219/2017 lock Swiss FADP warning Explicit consent required
01 — Advance healthcare directives

What advance directives are

An advance healthcare directive — known in Italy as DAT (disposizioni anticipate di trattamento) or ‘biotestamento’, and in Switzerland as a living will (Patientenverfügung) — sets out a person’s wishes about their medical care, in case they are no longer able to express them.

On Erabox you can create an advance directive capsule: a piece of digital content that records your wishes and delivers them, at the right moment, to the people and professionals you have chosen.

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Personal wishes
Guidance on the medical treatments, therapies and care you want or wish to refuse.
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Healthcare representative
The person you name to make sure your medical wishes are respected. Naming someone on Erabox is not the same as appointing a healthcare representative (fiduciario) under Art. 4 of Italian Law 219/2017, which requires the representative’s acceptance and the formalities required by law.
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Emergencies
Guidance on what to do if you are unconscious, in a coma or unable to communicate.
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Specific treatments
Guidance on medication, resuscitation, artificial nutrition and palliative care.
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Data that touches the most private part of your life
The information in an advance directive capsule concerns your health, your values and your life choices. It is among the most sensitive information there is, and that is why it deserves — and receives — special legal and technical protection.
02 — Special category data, Art. 9 GDPR

Why this consent is separate

The General Data Protection Regulation (EU) 2016/679 (GDPR) identifies, in Article 9, health data as a ‘special category’ that requires additional protection compared with ordinary personal data. In Switzerland, the FADP (SR 235.1) classifies health data as sensitive personal data (Art. 5(c)) and, where processing is based on consent, requires that consent to be explicit (Art. 6(7)(a)).

Erabox keeps and delivers your advance directives on your behalf, as processor, under the Data Processing Agreement you have accepted. Even so, it asks you for separate explicit consent, which also covers the processing Erabox carries out as controller, such as linking the advance directive capsule to your account.

To process this data lawfully, your acceptance of the Terms and Conditions is not enough. The law requires explicit, separate, freely given and informed consent — specifically for health data.

Legal requirementWhat it means for youReference
Explicit consent A clear affirmative action — not a pre-ticked box, not implied acceptance Art. 9(2)(a) GDPR
Separate consent Distinct from general consent: you can’t accept it ‘by inclusion’ in the Terms and Conditions Art. 7(2) GDPR
Dedicated privacy notice You need to know exactly what data is involved, how it is used, for how long and who it is shared with Art. 13 GDPR
Right to withdraw You can withdraw your consent at any time without consequences Art. 7(3) GDPR Art. 30(2)(b) FADP
Data minimisation We collect only the data strictly necessary for the advance directive feature Art. 5(1)(c) GDPR
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Our choice
We could have included this consent in the Terms and Conditions. We didn’t. You have the right to understand exactly what you are authorising, separately and knowingly.
03 — Processing advance directive data

How we process your health data

Data in advance directive capsules is protected by the security measures described below.

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Encryption
Advance directive content is encrypted at rest with AES-256 and protected in transit with TLS 1.3. The encryption keys are managed by Erabox, whose systems access the content when needed to keep it and deliver it.
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Limited, logged access
Access to the systems is restricted to authorised staff, for maintenance, security and support, and is logged. Erabox does not use the content of advance directive capsules for its own purposes. In the app, only you can see the capsule; the recipients you have chosen receive it on delivery.
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No commercial sharing
Advance directive data is never shared with advertisers, commercial partners or third parties not needed for delivery.
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Deletion on request
You can delete the advance directive capsule at any time. The data is permanently deleted within 30 days of your request.
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Data in Europe
Health data is stored exclusively on servers in Switzerland and/or the European Union, and is never transferred outside the European Economic Area without appropriate safeguards.
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Limited retention
Advance directive data follows the capsule retention periods set out in section 09 of the Privacy Policy. If you withdraw your consent or delete the capsule, the data is deleted within 30 days.
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Identity document and electronic signature
If you choose to sign the advance directive capsule with a simple electronic signature, Erabox verifies your identity through the provider Euronovate (Switzerland), which processes your identity document. For this processing Erabox is the controller and the legal basis is the performance of a contract (Art. 6(1)(b) GDPR). A simple electronic signature shows that the document comes from you; it does not give the capsule the form that the law requires for advance healthcare directives.
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Data Protection Officer (DPO)
For any question about how your health data is processed, you can contact our DPO at privacy@erabox.ch. We’ll reply within 5 working days.
04 — Important legal notices

What Erabox is not

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Key legal notice
An advance directive capsule created on Erabox does NOT replace, and does NOT have the same legal value as, an advance healthcare directive formally drawn up under applicable law. To be fully legally valid, an advance healthcare directive requires formal procedures that Erabox cannot guarantee.

Here is what the law requires for a legally valid advance healthcare directive, depending on where you live:

CountryFormal requirementsLegal reference
🇮🇹 Italy Three alternative forms: public deed (atto pubblico); private document with authenticated signature (scrittura privata autenticata); private document delivered in person to the civil registry office of the municipality of residence, which records it in a dedicated register where one has been set up, or to the health facilities in the Regions that have regulated their collection. If the person’s physical condition does not allow a written form: a video recording or devices that enable them to communicate. Exempt from registration duty, stamp duty and any other tax. They can be renewed, amended and revoked at any time, in the same forms. Registration in the national DAT database at the Ministry of Health. Law 219/2017, Art. 4(6)–(7) Law 205/2017, Art. 1(418) Ministerial Decree No. 168 of 10 December 2019
🇨🇭 Switzerland Written form, dated and signed, governed uniformly by the Civil Code for all cantons. The person who draws up the living will can have the fact that they have made one, and where it is kept, recorded on their health insurance card; if the patient lacks capacity of judgement, the attending doctor checks the card. Swiss Civil Code, Arts. 370–372
🇪🇺 Other EU countries Requirements vary from one Member State to another. Check with a legal professional in your country of residence. Varies by country
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What Erabox does with your advance directive capsule
Erabox keeps and delivers the informational content of your advance directive capsule to the people you have chosen — like a message from your life. It does not produce notarial documents, does not register anything in the Italian national DAT database or on the health insurance card, and does not replace a legal or healthcare professional. For an advance healthcare directive with full legal validity, speak to a notary or a specialist lawyer.
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The value Erabox really adds
Even without formal legal value, an advance directive capsule on Erabox can do something precious: deliver your wishes, explanations, reasons and values to the people you love — at the right moment, in your own words. A legal document says what you have decided. You can explain why.
05 — Stronger rights

Your rights over your health data

For special category (health) data, your rights are strengthened compared with ordinary data. In particular:

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Withdrawing consent
You can withdraw this consent at any time. Withdrawal stops future processing but does not affect the lawfulness of processing already carried out.
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Access
You can ask at any time for a copy of all the health data we hold for you.
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Immediate erasure
You have the right to erasure (the ‘right to be forgotten’) of your advance directive data. We carry out the erasure within 30 days of your request.
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Rectification
You can change or correct your advance directive data at any time, directly on the platform or by asking us for help.
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Portability
You can request your advance directive data in a structured, machine-readable format to transfer it to another service.
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Restriction
You can ask us to restrict the processing of your health data, without deleting it, while a check or an objection is pending.
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How to exercise your rights
Write to privacy@erabox.ch stating the type of request and your account. We’ll reply within 30 days (Art. 12 GDPR). For complex requests, this period can be extended by a further 60 days — we’ll let you know.
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Supervisory authority
If you believe the processing of your data breaches the law, you have the right to lodge a complaint with the FDPIC (Switzerland) at edoeb.admin.ch, the Italian Data Protection Authority (Garante per la protezione dei dati personali) at garanteprivacy.it, or the supervisory authority of the EU Member State where you live.
06 — Explicit consent, Art. 9 GDPR

Give your explicit consent

Please read the following points carefully. Your consent is voluntary, specific and can be withdrawn at any time. You can’t use the advance directive feature without this consent, but withdrawing it does not affect the rest of your Erabox account.

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